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Web Sites
The links provided here have been reviewed by
InnisfreeCancerHelp.org, and suggested by the Innisfree community in New Hampshire.
Medical professionals, cancer survivors and others dealing
with cancer have recommended these sites as being particularly
helpful to them. If you would like to suggest that a link be added
to our list, please contact
us.
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General
Cancer Resources |
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Oncolink: The University of Pennsylvania Cancer Resource
http://oncolink.upenn.edu
This comprehensive web site includes information from the
National Cancer Institute and other credible and reliable
sources. It includes good information on supportive care
information and offers links to other good web sites as well.
National Cancer Institute (NCI)
http://cancer.gov/
800-4-CANCER
Along with a comprehensive “Cancer Information” section
covering all aspects of cancer and cancer treatment, this
site has extensive information pertaining to Clinical Trials
including ways to search for a trial for a specific cancer
type. Many of NCI’s excellent patient information
resources and fact sheets are available online. The dictionary
of cancer-related terminology is a good reference guide for
patients.
People Living With Cancer
www.plwc.org
Oncologist-approved information on more than 50 types of cancer and their treatments, clinical trials, coping, and side effects. Additional resources include a Find an Oncologist database, live chats, message boards, a drug database, links to patient support organizations, medical illustrations and much more. The site,
the patient information website of the American Society of Clinical Oncology
(ASCO), is designed to help people with cancer make informed health-care decisions.
The Ulman Cancer Fund for Young Adults
www.ulmanfund.org/
This site provides support and education programs and other
resources to benefit young adults, their families and
friends who are affected by cancer and to promote awareness
and prevention of cancer. Of particular note are 2 unique
sections. "Prevention
Tips" clearly outlines self-care steps related to
the prevention or early detection of cancers common in young
adults. The "Discussion
Forum" is an interactive opportunity to discuss
issues such as dating and cancer or how to be supportive to
a friend with cancer.
The Leukemia and Lymphoma Society
www.leukemia-lymphoma.org
If you are looking for information about leukemias and other
blood-related cancers, this site is extremely helpful. You
can order free booklets, participate in web casts and
discussion groups, and find out about local Society
sponsored support groups. You can also search for clinical
trials through their HopeLink search.
Association of Cancer Online Resources, Inc.
www.acor.org
This comprehensive site manages a large number of online
resources for patients, caregivers and providers.
The Wellness Community
www.wellnesscommunity.org
This site features information for people with cancer
and their caregivers living in the Boston area. It is also
affiliated with a nation-wide network of other
"Wellness Communities." The organization offers
supportive programs, education and hope.
Dana-Farber Cancer Institute's Cancer
Treatment Information
www.dana-farber.org/can/cancer/
The information in this section of Dana-Farber's web site
covers many different diseases and is available in two
formats: one written for patients, another written for
medical professionals. The patient version uses common
language, while the version for medical professionals may
contain unfamiliar medical language and details.
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Coping With Cancer
Resources
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American Cancer Society
www.cancer.org
800-ACS-2345
People with cancer, their family and friends can find
information on local resources and supportive services at
this site. People on the cancer journey can access the
Cancer Survivors Network (CSN) by clicking on
“Survivors” on the home page. CSN allows survivors to
hear stories about other like them and dial in to
pre-recorded discussions. The ACS offers a wide array of
education and support programs and services, many of which
are available free-of-charge in New Hampshire communities.
National Coalition for Cancer Survivorship (NCCS)
www.canceradvocacy.org
NCCS provides information regarding many survivor issues
including insurance and employment problems. By clicking on
“Programs,” you can order a free copy of the “Cancer
Survival Toolbox,” a great set of audiotapes especially
for newly diagnosed people addressing such topics as
communication with your doctor, caring for the caregiver and
finding ways to pay for care.
Cancer Care, Inc.
www.cancercare.org
This nonprofit organization produces web casts, and offers
online discussions and counseling services as well as the
usual array of information on cancer and cancer treatment.
Also available are various e-newsletters on topics such as
prostate and colorectal cancer.
Cancer Symptoms Resource
www.cancersymptoms.org
The website of the Oncology Nursing Society which was
designed for patients and caregivers to provide information
on learning about and managing each of six common cancer
treatment symptoms: fatigue, anorexia, pain, depression,
neutropenia and cognitive dysfunction. A unique feature is
the ability to privately email a question to an oncology
nurse.
Chronic Conditions Information Network (CCIN) of VT
& NH
www.cc-info.net
Offers a web site, email-based news digests and printed
materials pertaining to living with a chronic condition in
NH and VT.
New England Coalition of Cancer Survivorship (NECCS)
www.neccs.org/
NECCS is a coalition of survivors, family members, friends,
caregivers and cancer-related organizations from all over
New England. They address common issues that affect the
quality of life and fair treatment of cancer survivors in
our region.
The Wellness Community
www.thewellnesscommunity.org
Provides a range of support services for people with cancer
and their loved ones. Click on "Virtual Wellness
Community" and access weekly professionally moderated
online support groups, mind/body resources, nutritional
information and the "Frankly Speaking About
Cancer" education series.
The Cancer Supportive Care Web Site
www.cancersupportivecare.com
The information contained in this web site originates from
the Stanford University program and covers a wide range of
topics in a relatively easy-to-read format. The table of
contents includes topics such as fatigue, nutrition,
sexuality and sleep disturbances. Each topic is covered in
a fair amount of detailed text, and some categories include
suggestions for activities and interventions used in the
Stanford workshop program.
Vital Options
www.vitaloptions.org
Vital Options is a nonprofit cancer communications and
advocacy site. Hear archived and live radio casts on cancer
topics and share experiences in the "Group Room."
Oncochat
www.oncochat.org
This site connects people together. Browse through the guest
book and respond to messages, or post your own. It's a good
way to reach out and get connected to someone with a similar
diagnosis, issue or for comfort. For patients and
caregivers.
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Complementary Care Resources
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National Center for Complementary and Alternative
Medicine (NCCAM)
http://nccam.nih.gov
This is the best web site for credible, science-based
information on this topic. NCCAM is at the National
Institutes of Health (NIH) and focuses on exploring
complementary and alternative approaches in the context of
rigorous science. Available through the section called
“For Consumers and Practitioners” are Fact Sheets, links
to CAM databases and Consensus Reports on various
approaches.
Cancer Links
www.cancerlinks.com/complementary.html
This site is really a linking site. There are about 20
complementary care categories listed including nutrition,
herbalism, acupuncture and meditation. Clicking on a
category leads you to multiple web sites devoted to that
topic. A large number and wide variety of web sites are
listed for each topic which should be carefully evaluated.
Some sites may contain questionable material, while many
others provide very good information.
Cancer Source
http://cit.cancersource.com/
This site is an excellent source for understanding what
types of complementary medicine are available. The
complementary therapy information offered is evidence based,
and non-biased.
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Pain Resources
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MD Anderson Cancer Center Pain Resources
www.mdanderson.org/topics/paincontrol
MD Anderson, a leading Comprehensive Cancer Center in Texas,
offers a good web site related to cancer pain. Along with
links to other good pain-related websites, there is a
section on “Cancer Pain Basics” which provides good
material on understanding cancer pain treatment options and
approaches.
Cancer Care Inc.
www.cancercare.org/Pain/Painmain.cfm
Special Section on Managing Pain.
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Genetic Risk |
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Facing Our Risk
www.facingourrisk.org
This nonprofit organization's web site serves as a resource
to people interested in learning more about hereditary
breast and ovarian cancers. Included is information about
assessing personal risk, genetic testing, researching your
family history, and insurance and privacy issues. There is
also a listing of centers throughout the country that offer
clinics for high risk women.
Breast Cancer Prevention
www.breastcancerprevention.com
This site educates women about their own breast cancer
risk and provides critical information about an ongoing
trial to prevent the disease.
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Advocacy Sites |
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The Association of Community Cancer Centers (ACCC)
www.accc-cancer.org/publicpolicy
This leading national interdisciplinary organization
defining quality cancer care has launched a public policy
web site that serves as a tool to help educate patients
and their families about issues impacting cancer care, and
bring patients and doctors together to discuss important
cancer issues, such as new therapeutic modalities, insurance
reimbursement and clinical trials. The web site also
features information for patients and their families
regarding access to cancer care, and details on oral cancer
drugs and the congressional actions affecting use of such
drugs.
National Breast Cancer Coalition
www.natlbcc.org
A grassroots advocacy organization dedicated to fighting
breast cancer.
New Hampshire Breast Cancer Coalition
www.nhbcc.org
A statewide advocacy organization dedicated to fighting
breast cancer.
New England Coalition of Cancer Survivorship (NECCS)
www.neccs.org/
NECCS is a coalition of survivors, family members, friends,
caregivers and cancer-related organizations from all over
New England. They address common issues that affect the
quality of life and fair treatment of cancer survivors in
our region.
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Nutrition
Sites |
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While Under Treatment
Cancer Supportive Care, Inc.
www.cancersupportivecare.com/nutrition.html
The nutrition information on this site is helpful to
those under going treatment and the caregivers who prepare
food for them. There is information on coping with
common treatment-related problems, like taste changes and
lack of appetite. And some limited content on herbs and
nutritional supplements. Browse the entire site to find
other nutritional tidbits like, "Ask Your Favorite
Dietician."
National Cancer Institute
www.cancer.gov/templates/doc_img.aspx?viewid
=8055355f-7885-48eb-9369-7d6ea3e520bb
This National Cancer Institute site has good information on
eating tips for patients with their downloadable
publication, "Eating Hints for Cancer Patients: Before,
During and After Treatment."
Prevention and Risk Reduction
Arizona Cancer Center
www.azcc.arizona.edu/nutrition/index.html
This Arizona NCI designated cancer center user friendly web
site offers tips, recipes and helpful nutrition
information.
American Cancer Society
www.cancer.org/docroot/ped/ped_3.asp?sitearea=ped
Here you can find information relevant for people who would
like to reduce their risk for developing cancers. Included
are sections on dietary supplements, recipes and a
nutrition and physical activity quiz.
General Nutrition
Center for Science in the Public Interest
www.cspinet.org
This site posts the Nutrition Action newsletter by the
Center for Science in the Public Interest. Topics are
varied, and though, not cancer specific, they address many
important nutritional concerns. Story topics, like
"What a pizza delivers," about the pros and
cons of a favorite food, and "Meatless Marvels," a
review of vegetarian products, are sure to spark interest to
all.
5 A Day Program
www.5aday.gov
This easy-to-use site outlines the 5 A Day for Better
Health program. Find tips, order materials, recipes and
serving size information.
The Tufts Nutrition Navigator
www.navigator.tufts.edu
This is a great general nutrition site, with recipes,
tips, nutritional information and more.
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Work
and Employment Issues |
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EEOC
http://www.eeoc.gov/facts/cancer.html
http://www.eeoc.gov/facts/telework.html
This is the U.S. Equal Employment Opportunity Commission
site that provides information about the rights of workers
with cancer under the Americans with Disabilities Act.
Cancer Source
www.cancersource.com/resources/workandmoney
This site covers employment rights, health
insurance rights and offers a sample letter to use
for insurance company correspondence for coverage
issues.
Cancer and Careers
www.cancerandcareers.org
This site, though focused primarily on women,
has useful strategies on dealing with your employer,
stress, sections for coworkers and travel tips.
Patient Advocate Foundation
www.patientadvocate.org
This foundation offers education, legal counseling
and referrals to cancer patients and survivors
concerning managed care, insurance, financial issues
and job discrimination and debt crisis.
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Clinical
Trials |
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Cancer Trials
www.cancertrialshelp.org
This easily navigable and user-friendly site
leads to the National Cancer Institute database.
Cancer 411
www.cancer411.com
Cancer 411 is dedicated to provide patients and
their families with the critical information they
need, as soon as possible.
National Institute of Cancer
www.cancer.gov
This is the National Institute of Cancer web site,
you directly access to their database of clinical
trials.
Dana-Farber Cancer Institute
www.dana-farber.org/res/clinical
Search all open clinical trials at Dana-Farber/Harvard
Cancer Center that are currently accepting new patients. You
may also find a match by calling (866) 790-4500.
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End
of Life Care Resources |
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Hospice Net
www.hospicenet.org
This web site provides information and support to patients
and families facing life-threatening illness including
cancer. There are sections on hospice care, bereavement
care, caregiver support, managing pain and much more.
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If you have comments on any of these sites, or
wish to nominate a cancer-related web site for the Site of the
Month, please contact info@InnisfreeCancerHelp.org.
Please include your name and a telephone number or an e-mail address.
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